Emma Heming Willis
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FTD families deserve to be seen, counted, and supported.
I wrote this op-ed because awareness alone is not enough. We need systems that recognize the reality families are living every day and help move research, resources, and support forward.
Please take a moment to watch, read, and share. If you live in CA, please consider contacting your local legislator and urge support for SB 1047 because visibility matters. 💙 links in bio
04/13/2026
In the earlier days, FTD felt like it took away all sense of hope and agency. But over time, I realized I still had choices.
Moving from isolation to connection, and then into advocacy, gave me a way to stand up to it.
If you’re walking this path, I want to share something I wasn’t told, but feel is important to say. That not everything is lost, and that there is a way through this, in your own way, in your own time.
💙 Read on the blog at EmmaHemingWillis.com — link in bio.
The Emma & Bruce Willis Fund
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