Rare Access Action Project
About RARE Access Action Project
The Rare Access Action Project (RAAP) began in 2017 as an ad hoc coalition advocating for solutions to rare disease patient access in health care. Our organization has evolved and is now a registered 501 c4 non-profit that is engaged in ongoing initiatives on both the Federal and State levels. Consisting of patient advocates, emerging life science companies, and o
03/22/2024
We invite you to join us as we engage with patient advocates and stakeholders, sharing insights about ongoing legislation in key states, current PDAB decisions, preparations for the 2025 legislative session, and proactive strategies. Register here:
https://tinyurl.com/RAAP-PDAB
Click here to claim your Sponsored Listing.
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Contact the organization
Address
Washington D.C., DC
