ClaudeStrong

At times it may seem like I’m not posting much on this page but please feel free to reach out with anything.

Claude has a restricted lung disease, he is in the beginning stages of left ventricle heart disease, Claude is vitamin D deficient and alol of causes/ side effects of the DMD. Claude ride a motorized scooter (a smaller version of the Walmart ones) for long distances and while he is a school. he also goes to physical therapy one a week to help maintain his mobility.

Claude goes to Children’s Mercy Hospital to see a team of doctors and specialists (literally like 10 professionals) every 6 months. He also see a bone and mineral doctors about ever 4-6 months and has to get blood work aboit every 2 months. And yea we have to drive to KC every time even for just blood work. Claude is only one 2 meds at this point a heart med and vitamin D. He was on a steroid for about 6 months but I had him taken off due to him gaining like 60 lbs in that period of time. The muscle and nerve team suggest he stay on it but for us the side effects outweighed the the benefits. Claude is very much involved in all of the decisions that are made with his health. We talk about it and research it until we are comfortable with the decision. If he takes a med and doesn’t like it we talk with the doctors and come up with a solution. Even though he is only 11 I do not keep much from him about his health. Something’s I do not tell him until we are certain about them mainly to not stress him out about it. He is still a kids and I don’t want him to be overwhelmed or feel like he can’t be a kid.

Duchenne Muscular Dystrophy is a rare disease and is the most progressive and aggressive forms of Muscular Dystrophy in boys.

Duchenne muscular dystrophy is a genetic disorder characterized by the progressive loss of muscle. It is a multi-systemic condition, affecting many parts of the body, which results in deterioration of the skeletal, heart, and lung muscles.

Duchenne is caused by a change in the dystrophin gene. Without dystrophin, muscles are not able to function or repair themselves properly.

Claude is my 11year old son. He has a twin sister and two older sisters as well. He is very full of life and is a mama’s boy through and through (just like his dad) Claude love to play with his hot wheels and love cars and trucks mainly Fords. He love to help anyone who is working on them and watching India of videos and shows about cars. Claude is very protected by his sisters, myself and the rest of his/out family. Claude loves to be around family and friends.