Karson Jax Updates

I just wanted to share the most cutest picture you’ll probably see all day. The way my little brother loves and cares for Karson is just unreal. Hands down Karson has the best uncle around 👌🥰🥹

So happy for Link Alucard Irvin! While our worlds were crashing with the diagnosis of Karson, we connected with Links mom, Ashley via one of the NKH support groups who just so happened to be in Egleston at the same time. Link was Eglestons first NKH and Karson their second. One day as Chelsea and I were leaving the hospital, Ashley and Ryan were coming in, and as we passed in the main entrance, we were able to meet in person and from that moment, Ashely was our lifeline for the months to follow. We are so grateful for knowing them and we are so happy and proud of Link 💙

2 years ago today our world came to a sudden stop and our hearts were breaking. 2 years ago today we discovered a rare genetic/metabolic condition we had no clue we carried. 2 years ago today we became family to an amazing group of people who supported us through everything. 2 years ago today we were told to prepare for the worst. 2 years ago today we were beginning to plan a memorial. 2 years ago today you fought with a fury and showed those who said you couldn't that you would. Now today you have made another show of just how determined and strong you are. Doctors said you needed a tracheostomy and there was no other way. They said you would ALWAYS need it. They said you would ALWAYS need a ventilator. They were WRONG because today you excelled and showed them your strength. You are now a trach free baby and doing AMAZING! We are so proud of you Link and are so excited to go on new adventures with you! We love you so much baby boy!!! Keep showing them just how strong you are!!!