Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy

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Parent Project Muscular Dystrophy (PPMD) is the largest most comprehensive nonprofit organization in the United States focused on finding a cure for Duchenne muscular dystrophy—our mission is to end Duchenne. We invest deeply in treatments for this generation of people affected by Duchenne and in research that will benefit future generations. We advocate in Washington, DC, and have secured hundreds of millions of dollars in funding. We demand optimal care, and we strengthen, unite and educate the global Duchenne community. Everything we do—and everything we have done since our founding in 1994—helps people with Duchenne live longer, stronger lives.

11/09/2026

❤️ 🫀 Heart health is central to and care. What should families know about cardiac transplantation as a potential treatment option?

Join PPMD on Wednesday, November 18, 2026 at 1:00 PM ET for a discussion on cardiac transplantation, including what type of patients may be eligible, how clinical teams are evaluating candidacy, and how options such as heart transplants, ventricular assist devices (VADs), and other advanced heart failure therapies are changing what may be possible for individuals with dystrophinopathy.

Speakers will explore advances in dystrophinopathy care, evolving treatment considerations, and resources to help families navigate these conversations with their care teams.

Register today and submit your questions in advance!

https://www.parentprojectmd.org/events/webinar-cardiac-transplantation-in-dystrophinopathy/

Sarepta Shares Update on ENVISION Clinical Trial and Ongoing Duchenne Research 11/05/2026

Today, Sarepta Therapeutics shared an update through a community letter regarding its research and clinical development programs, including an important decision about the Phase 3 ENVISION clinical trial evaluating ELEVIDYS in non-ambulatory and late-ambulatory individuals living with .

Learn more:

Sarepta Shares Update on ENVISION Clinical Trial and Ongoing Duchenne Research Today, Sarepta Therapeutics shared an update through a community letter regarding its research and clinical development programs, including an important decision about the Phase 3 ENVISION clinical trial evaluating ELEVIDYS in non-ambulatory and late-ambulatory individuals...

Photos from Parent Project Muscular Dystrophy's post 11/04/2026

We are celebrating a historic achievement for the Race to End Duchenne endurance fundraising program following the 2026 TCS New York City Marathon this past weekend 🎉 This year’s team raised $300,000, marking the most successful fundraising effort in the history of Race to End Duchenne’s NYC Marathon program! 🎉

Over the past two decades, Race to End Duchenne has raised more than $19 million to support PPMD’s work to advance research, improve care, accelerate access to therapies, and advocate for individuals and families affected by and . This year’s record-setting NYC Marathon team adds another milestone to that legacy ❤️

Thank you to every runner, donor, volunteer and cheering section who helped make this possible!

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Silver Spring, MD
20901, 20902, 20903, 20904, 20905, 20906, 20910

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