Cure AHC

We are pleased to announce a new collaborative research project focused on understanding the brain mechanisms behind Alternating Hemiplegia of Childhood (AHC).

This project is made possible and led by Nina Frost from RARE Hope.

Jointly funded by RARE Hope, Cure AHC, and The AHC Foundation this NIH/NINDS study will explore how ATP1A3 mutations affect cerebellar circuits involved in movement and coordination. Researchers hope to better understand why episodes of dystonia, hemiplegia, and other paroxysmal symptoms occur in AHC.

By investigating the brain circuits involved in these symptoms, this work may provide important insights into disease mechanisms and help create a foundation for future therapeutic development.

We are grateful for the continued collaboration across the AHC community that makes research like this possible.

We’re just 13 days away from the Cure AHC Family & Science Meeting!

One of the most meaningful parts of this event is seeing AHC parents working hand-in-hand with researchers to make studies more accessible and less intimidating for our children. Annabelle and Archie are getting ready for this summer’s research by practicing with their EEG swim caps and sleep masks provided by the research team. 🧠 By turning unfamiliar procedures into something fun and familiar at home, we can help reduce anxiety and set our kids up for success. ( a huge shout out to the planning teams from Cure AHC, RARE Hope , and For Henry AHC !)

There’s still time to register virtually, so don’t miss the opportunity to learn from leading experts, hear the latest research updates, and be part of a community working toward a cure.

We can’t wait to see you there! 💙🧡

Register For Virtual Here: https://cureahc.charityproud.org/EventRegistration/Index/26166