International Rett Syndrome Foundation - Oregon Page
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Please feel free to post questions or comments about the content! The Regional Representative Program has been established to provide emotional support, information and resources to families affected by Rett syndrome. It is used as a vehicle to promote family gatherings and fundraisers to support IRSF’s mission. The program has greatly expanded over time, closing in on acquiring a Regional Rep for
Attention local Rett families! Stoel-Rives is looking for Dragon Boat Paddlers for their team called "Reverse Rett-Karina's Crew". Practices are twice a week on the Willamette and races are early June. If you are interested, please message me!
ODE just released a memo to all Oregon school districts reminding them of their obligation to provide full time services to transition age students with disabilities. The full memo is attached, but the key quote is this: "The obligation to provide a full day of school to these students is a Division 22 Standard and is required by state law. The Deputy Superintendent may find districts that fail to provide those programs to be “non-standard,” requiring remediation of that practice."
Thank you, Deputy Superintendent Saxton and Assistant Superintendent Hagen-Gilden for making this important issue so clear! Thanks, too, to Disability Rights Oregon and Youth Rights and Justice for their role in keeping this issue on the front burner
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Portland, OR
