Sammy-Strong

🦘🦓💜

“TBC1D24 disorder is so rare that it felt like we were the only ones living with it.”
For JoeyLynn Nolan, finding a diagnosis didn’t just name her son’s condition, it opened the door to connection, understanding, and hope.
In her Rare Disease Month reflection, she shares how connecting with another family changed everything, and why answers matter for families navigating the unknown.
Read how diagnosis, community, and Baby Joey’s legacy continue to make an impact: https://hubs.ly/Q044sWsH0

5 years Without you feels like way too long bubby. 💙