Fibromyalgia Help

Fibromyalgia Help

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09/03/2020

Can someone with digestive tract paralysis eat? Yes, most of us are perfectly capable of putting food into our mouths, chewing, and then swallowing the delectable morsel of our choosing.⁣

SHOULD an individual with severe gastroparesis and/or chronic intestinal pseudo obstruction eat? Maybe not. Or at least nothing significant. Every patient varies in their ability (or lack there of) to eat. Still, it’s important to keep introducing food to the gastrointestinal tract. The stomach is a muscle. If you don’t use it, you lose it. ⁣

So, how do I handle not eating anything substantial? The long periods of being NPO? That’s a loaded question. The answer is—I don’t. ⁣

Those with digestive tract paralysis have a strange relationship with food. For me, I do attempt to eat here and there when not in a massive flare, but what I do eat is vented out of my PEG tube attached to my stomach. Essentially, it’s like puking without it coming out of my mouth. Gross. However, venting is not fool proof. Inevitably, minimal amounts of food escape past the tube creating the potential for illness (bowel obstruction, nausea, vomiting, etc). ⁣

While trialing bites of food on occasion is important, I’m fully aware that my “pleasure eating” will result in illness comparable to food poisoning or a stomach flu. Yet, I do it anyway. Why? ⁣

Food is such a basic component of life. Celebrations stem around food. Families bond over meals. I like to feel included. So, it’s difficult to consider the consequences in the moment. ⁣

I may have acquired the skill of being hungry and nauseous simultaneously (I bet you didn’t know that was possible!!), but finding balance between eating enough to preserve bowel motility and not making myself emergently ill is a skill I’m unsure if I will ever successfully master. ⁣

As I shove a bite of cupcake into my mouth, nauseating dry heaves overtake my body. I curse my stupidity—claiming “I’m never eating again.” That is, until next time. Because when nausea no longer swirls in the bit of my stomach and the pain relents, I always do it again...eventually. ⁣

Some would say that’s the definition of insanity, but I call it hope.

Cre: hospitalprncss

09/03/2020

😅😅😅 Sounds about right!

The world is a hot mess right now, bed for a few months sounds is more appropriate.

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08/15/2020

Each year on May 12, millions of people observe National Fibromyalgia Awareness Day.

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08/13/2020

I want to introduce you to a dear friend, , and share with you her story of life with Fibromyalgia.
We were placed in the same lab group, and I instantly knew she was someone I would be inspired by. She recently started chronicling her journey with Fibromyalgia and as part of Fibromyalgia Awareness Month I knew I had to help spread her story.
The facts are staggering; one in three will battle Fibromyalgia or Chronic Pain, and it significantly affects women greater. It is a complex chronic pain disorder that causes widespread pain and tenderness in the body with no cure currently. I encourage you to follow her and learn more about this disorder that has physical, mental and social implications.
“We have two options, medically and emotionally: give up or fight like hell”

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08/13/2020

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08/12/2020

Here’s some facts about us . Read every single one of these, and that’s us! I’m sure we have all thought these things, or been told them. But what we thought/were told is not true. This is our truth!

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08/12/2020

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