NF Family Association
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The Neurofibromatosis (NF) Family Association is a parent volunteer group that exists to support families and individuals at The Children’s Hospital of Philadelphia (CHOP) who are affected by NF1, NF2 or Schwannomatosis Our goal is to help enhance and expand CHOPS NF Clinical service and research endeavors, and build an NF community through robust educational and fundraising activities.
04/13/2026
We’re just 13 days away from our 2026 Spring Picnic. Please be sure to let us know you’re coming. (Please include the number of people in your group.)
03/11/2026
Save the date for our spring picnic!
10/20/2025
We’re excited to announce that we will be hosting an in-person Neurofibromatosis Symposium on Sunday, November 2, 2025, from 10am to 2:45pm at the CHOP Buerger Center for Advanced Pediatric Care, in rooms 1212, 1213, and 1214.
Kindly RSVP so we can plan accordingly.
https://www.eventbrite.com/e/neurofibromatosis-symposium-tickets-1797012465659?aff=oddtdtcreator
04/15/2025
Let us know you’re coming to the spring picnic. Please RSVP by Sat 4/19.
03/03/2025
Please save the date for our 2025 spring picnic. 🧺
09/26/2024
Tomorrow is the last day to register for the 2024 Neurofibromatosis Symposium taking place on October 5th.
Neurofibromatosis Symposium This symposium will provide information about advances in neurofibromatosis (NF) research and care.
Click here to claim your Sponsored Listing.
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Philadelphia, PA
