MctdHOPE

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Events « Rare Disease Day USA 01/20/2012

Check to see if there is a Rare Disease Day event in your area!

Events « Rare Disease Day USA Join NORD in creating awareness for Rare Disease Day. Learn all the ways you can support the 30 million Americans affected by rare diseases.

Using karate, fighting condition 04/27/2011

Here's an inspirational story about a woman fighting back against MCTD symptoms with karate!

Using karate, fighting condition A pallor swept over Darla Loy’s hands and feet when she was cold. Her hair thinned. Headaches pounded. Arthritis shot pain through her 28-year-old frame.

04/08/2011

Help Cure MCTD, Help Support mctdHOPE is raising funds to support Mixed Connective Tissue Disease research.

Mother sets out to buy iPads for other autistic children 04/06/2011

Check out this story about a mom with MCTD helping her son & many other autistic children communicate! Also take a look at her organization Loud Mommy http://www.facebook.com/pages/Loud-Mommy/189490214397830

Mother sets out to buy iPads for other autistic children The profound transformation in the Oathout household, as Grady slowly began to reveal his thoughts and feelings via his iPad, triggered a transformation in Tara Oathout herself. She is now dedicated to getting the same device in the hands of other families like her own –– families who are struggli

Raise Your Hand to Fight Rare Diseases 02/28/2011

Today is International Rare Disease Day. 1 click = $1 donated to research for rare diseases! Click & Share!

Raise Your Hand to Fight Rare Diseases Click here and Lundbeck will donate $1 to the National Organization for Rare Disorders general research fund.

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