Prayers For Paisley Rae

Long Day at CHOP Oncology Clinic for this little bird. Paisley is meeting with the Oncology Neuro Psych team for an assessment to check for any residual effects from all the chemotherapy she received then she'll have to bloodwork done followed by seeing her CART team and lastly the Immunology team ! This little girl is just simply amazing and just keeps asking when she can go back to school 🥹Please take a moment & pray with us for continued health & keeping this warrior princess's Cancer at Bay. Shes such a fighter 🎗️

Hi everyone! We know we haven't updated in a LONG time so we figured we were due for a long update! we like to go by the saying "no news is good news". Since turning 3 so many good things have happened! Paisley is now a little "threenager" as we Like to say she has grown up in such a short time! She Loves: Taylor Swift,asking questions, cracking jokes and playing with her big brother. She's a girly girl so she loves doing makeup, getting her nails done and loves to cook and bake anything under the sun especially cookies and cupcakes! She is still a little ballerina and will be in her first recital this spring! She's playing soccer still and is looking forward to joining all new activities and sports this next year.

She had an eventful fall and winter! Recently we linked up with an amazing organization called
Kisses for Kyle Foundation who absolutely SPOILED HER as well as all of their families involved with them . If you have a moment please check out their page and consider donating as they graciously and selflessly help sooo many families affected by cancer.

Kisses for Kyle allowed Paisley as well as 42 other kiddos be a part of the fearless 43 which included meeting all of the Philadelphia union team and go out on the field at halftime as they were celebrated by the entire stadium. It was one of the most emotional moments we have ever witnessed

This years Christmas was probably the best we have ever had . Paisley's favorite thing to do at Christmas time is look at different light . We got to go to a variety of drive through light shows and partake in winter activities: Kisses for Kyle once again was amazing offering various holiday activities and linking up with another of our absolute favorite companies Minnie's Magical Moments donating their time and characters so that oncology families could meet Santa, Mrs. Clause as well as Mickey and Minnie Mouse privately. All of the kids were so excited and families were so appreciative.

She had the best summer ever living down we the shore in Brigantine and is patiently waiting for the nice weather to hit so she can get to the beach all day again soon!
She will also be starting SCHOOL next year!
If you would've asked us if this was our future a few years ago we could never have even imagined it!

As far as her health, she still remains immunocompromised so she tends to get sick a lot , mostly continuous cold like symptoms however she always remains upbeat. She still gets her infusions to help boost her immune system and she's learning to attempting to walk while it's going which makes things a lot more "normal" for her . We recently found that her vision in her right eye (the one that had cancer behind it) has significantly decreased so the team recommends her now wearing glasses 24/7 (still working on that adjustment). she also has some dental issues due to the chemotherapy and abundant oral steroids she received when she was younger. Yes sometimes it hurts because it seems the effects of cancer will continue to linger for years to come BUT these issues are minimal compared to what we could potentially be facing so we will absolutely take these minor setbacks and run with it.
Next Tuesday, Paisley wil return to CHOP for her THREE year CART check up. She will meet with her oncologist and immunologist to see where she's at. Of course we pray for the best news possible but we know it is out of our hands but we always hold Our faith over fear! We know she's got this and that God has her.
We promise to keep you all updated and apologize it took so long to update , we know it was way overdue. We appreciate every single one of you for all the continued love thoughts and prayers.
"PrayersforPaisleyRae # FaithOverFear

Paisley Rae is Three and Cancer Free!!
Apologies for the delayed response but it takes a while for certain lab results to generate back to us. As of now Paisley's Labs look amazing! She still has a little over 9% B cells but overall the team isn't concerned. She will have to continue with her weekly infusions due to the fact that the B cells that her body is generating are still not functional. Overall this is the best news we could ask for.
In other news Paisley recently turned 3!! She celebrated by having a beach bash with her little crew and our amazing family and friends. I remember when Paisley was first diagnosed and we knew our odd were less then 20% we were so depressed and anxious. One of the drs said to us one day Paisley Rae's going to be 3 years running up and down these halls . I've held onto that comment for three years and just feel so incredibly grateful that it became true!! From the outside she is your typical toddler, Full of energy, Growing and thriving living life to the fullest. She is a total beach bum along with Paxton it their absolute favorite place to be.
She is still doing dance and will start a few new classes as well as some other sports in the fall. It's amazing to continue to see her live a relatively normal life. We are so grateful that we are blessed with our baby girl everyday. God is so good. Thank you all for continuing to stay and support us 🤍.