Medlive

Save the date! We’re excited to support our partner National Organization for Rare Disorders, Inc. (NORD)'s 2026 .

This event connects scientific and medical patient advocacy leaders with clinicians and researchers across to support research readiness, trial design, and progress for patients. The opportunity to foster cross-disciplinary conversations, with patients at the forefront, underscores our shared commitment to advance rare disease education.

🔗 Join the community advocating for rare diseases: https://nordscience.org/

Now on demand: Watch our session on myasthenia gravis (MG) clinical trials.

Two neurologists and a patient advocate living with MG explain what clinical trials are, how they work, and what you should know before joining one.

Watch now: ➡️ https://bit.ly/4aYJaML

Partnered with: Myasthenia Gravis Association

Join us LIVE at 7 PM ET for a session about myasthenia gravis (MG) clinical trials.

Two neurologists and a patient advocate living with MG explain what clinical trials are, how they work, and what you should know before joining one.

Tune in and learn how research is helping move MG care forward.

Register now: ➡️ https://bit.ly/4aYJaML

Partnered with: Myasthenia Gravis Association

🗓️ Save the Date!

Medlive is hosting an online program to help people better understand clinical trials for extensive-stage small-cell lung cancer (ES-SCLC).

If you or someone you love is living with lung cancer, you may have questions like:

What is a clinical trial?
How do I know if I qualify?
What may participation look like?

This session will share supportive, patient-friendly information from experts and advocates.

🗓️ Live on March 9 at 1:00 PM ET
👉 Register today to save your spot: https://bit.ly/406HH0H

In partnership with: Lung Cancer Research Foundation and BlackDoctor.org

Join this patient education program to hear from a doctor, a patient advocate, and someone living with EPP or XLP. They share new treatment updates, ways to stay safe in the light, and real life experiences.

Learn what to expect at school, work, and home. Get practical tips to help you feel more prepared and confident at any age.

Tune in: ➡️ https://bit.ly/3N3JWyG

Partnered with: National Organization for Rare Disorders, Inc. (NORD) and United Porphyrias Association

Every person with a rare disease deserves access to the right care, research, and support. Medlive is proud to stand with our partner, the National Organization for Rare Disorders, Inc. (NORD), to expand access to rare disease education.

Because rare diseases are often invisible, patients and families show their stripes to raise awareness. Healthcare professionals can do the same by strengthening diagnostic awareness and delivering more informed care.

Join us to drive change, foster innovation, and create a future where no condition is too rare to matter: https://bit.ly/4rA6FRZ

💜✨🦓