Cure MITO Foundation
07/10/2026
"Kindness is a deliberate and proactive action that supports human dignity, fosters meaningful connections, and contributes to the well-being of others."
This powerful definition comes from a new paper by Nicki Macklin, Laura Wilkinson-Meyers, and Anthony Dowell, published in SSM – Health Systems.
The authors explore how international experts define kindness in healthcare, how it differs from empathy and compassion, and why a clearer understanding of kindness is important for healthcare practice, research, and organizational culture.
Read the paper here: https://www.sciencedirect.com/science/article/pii/S2949856226001042?via%3Dihub
A little look at summer through the eyes of our incredible community. Thanks for letting us share these moments with you! 💚☀️
07/08/2026
"Parents often know when something is different long before they know how to explain it."
This thoughtful article from Courageous Parents Network explores why listening to parents isn't just compassionate care - it's better care. It highlights the unique expertise that comes from living alongside a child every day and the importance of true partnerships between families and healthcare providers.
What Clinicians Mean When They Say, “The Parent Is Always Right”: A Reflection Parents know their children best. Learn why pediatric experts say trusting parental intuition improves care, strengthens partnerships, and leads to better...
July is National Bereaved Parents Awareness Month. Sadly, grief—and the anticipation of it—is something all too familiar within the Leigh syndrome community.
In the video below, Libby reflects on the complex reality of living in two worlds at once: finding joy in the progress her daughter Quincy is making today while also carrying the knowledge that one day everything could change. We encourage you to take a few minutes to watch this powerful and deeply moving reflection.
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