The Virtual Center for VCFS

recently, 22q11.2 deletion syndrome. Nearly 200 distinct anomalies and disorders are associated with VCFS. Although 1 in every 2000 people in the U.S. has VCFS, this is still considered to be a rare disease. Because so many problems can occur in people with VCFS, it is difficult to have all of the specialists needed for the diagnosis and management of the syndrome and its symptoms together in one location. The information needed to determine management of VCFS may not be available to everyone, and most information available to the public on the internet or in publications is general in nature and may not apply to everyone affected by the syndrome. The Virtual Center for Velo-Cardio-Facial Syndrome may be the solution to the need for more specific and useful information.