Miracle For Mackenzie
03/13/2023
I would like to add for those don't know. MacKenzie has Parry Romberg Syndrome. It's an autoimmune disease . Her cells basically eat themselves. Starts out with the soft tissue works to the muscle and then the bone. Usually affects the left side of the face. Every case is different. This is a very rare disease she was diagnosed at 8. When she was 9 she had a surgery that in a perfect situation would have stopped her progression. It didnt..She still struggles with the progression... Kenz doesn't let this hold her down she always finds a way to rise above. This is her current mission.. Please consider helping.. even if it's just sharing her post..
03/13/2023
This is from MacKenzie. ....
I go for monthly infusions at Oishei Children's Hospital. The infusion unit has just been moved and it's not as homey and comforting as it was before. I am putting together donations that I could bring in for the kids and teenagers that go through infusion treatments. Some things that I'm collecting are travel-size lotions, travel-size wipes, small comfort stuffed animals, activity books, colorful and soft blankets, and suckers. The lotions are for the marks that the bandaids and wraps leave behind. The wipes are for the bandaid and tape residue. They can also be used to clean up the occasional dry blood. The stuffed animals are for comfort and the blankets are for comfort and warmth. The suckers are for the metal and gross tastes the infusion leaves in your mouth. If your interested in donating please message me.
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