Team Kindelmann
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Cystic fibrosis is a defective gene and its protein product cause the body to produce unusually thick, sticky mucus that: clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. Mati is 1 of 30,000 people in America diagnosed with this chronic disease.
05/09/2018
Charlie has had more lung problems then Mati. In her 5 1/2 short years of life, she has had to stay in the hospital for a total of 24 days. This was mostly because she cultured RSV or pseudomonas. She had 4 bronchoscopy procedures (and another scheduled for Friday along with 2 other procedures). She had surgery on her trachea at a year old. And she has had a total of 3 PICC lines.
Mati and Charlie have the same gene mutations. Even though they have the same mutations, it affects both of their bodies differently. Mati has more pancreas issues while Charlie has more lung issues.
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