e (CNRN) based in Honolulu, HI. My professional passion centers on providing exceptional care to individuals navigating acute, chronic, and complex neurological conditions. My expertise encompasses a wide range of neurological challenges, with a particular emphasis on neurometabolic, cerebral venous, and cerebrospinal fluid (CSF) disorders, as well as related conditions such as hypermobile connective tissue diseases, mast cell activation syndrome, melanocortin-4 receptor deficiency, chronic migraine, headache, and facial pain. These conditions have directly impacted my family, fueling my commitment to patient advocacy and specialized expertise. This personal connection drives my unwavering pursuit to destigmatize these often-misunderstood conditions. I believe in empowering patients through advocacy, fostering supportive networks, providing comprehensive education, advancing research, and delivering compassionate clinical practice. The rapid pace of scientific discovery is illuminating the intricate cellular and metabolic pathways underlying these diseases, offering new insights into their foundations, manifestations, and potential treatment options. By fostering collaborative partnerships with experts and patients who share genetically or neurometabolically related conditions, we can amplify our collective efforts. This collaborative approach accelerates our progress, enabling us to better serve affected individuals, families, and communities. To further this vision, I founded the Ohana Mana Network for Neurometabolic Wellness LLC and host its dedicated podcast. This platform serves as a vital resource and supportive community for our 'ohana of neurometabolic, cerebral venous, and CSF disorders patients, advocates, and experts. Through the power of storytelling, active listening, and mentorship, we honor each individual's journey. Our work is grounded in compassionate, holistic, and evidence-based content, providing hope for a brighter tomorrow. By working together, we can improve the quality of life for those impacted by these challenging neurometabolic conditions. Tiffany Hoke DNP, RN, RNP, APRN-RX, AGACNP-BC, SCRN, CNRN
Ohana Mana Network for Neurometabolic Wellness LLC
Founder & CEO | Medical Director | Neuroscience and Neurovascular Nurse Practitioner
Cancer Survivor Living with Familial Neurometabolic Syndrome, Cerebral Venous, and CSF Disorders
