Texas Rett Events

North Texas Rett Families,
As many of you have now heard, a young girl with Rett syndrome has lost her life as part of the gene therapy clinical trials. We may not know her name but we feel the pain her family and our Rett community is going through at this difficult time.

In honor of this Rett Syndrome warrior angel (and the countless other angels who have gained their wings) an impromptu gathering will be held on

Sunday, November 24, 2024, at 2 p.m.

Gussie Field Watterworth Park

2610 Valley View Lane

Farmer’s Branch, TX 75234

…to share our collective grief, and to pay tribute to this precious, young life sacrificed in order to advance the research to find a for a cure for our loved ones battling Rett Syndrome.

Inviting all Rett families & friends to join us for the annual Rett Strollathon. Register here and come have fun!

https://give.rettsyndrome.org/give/t587428/ #!/donation/checkout