Rare Cancer Research Foundation

We’re inviting members of the rare cancer community to share their stories and photos on our website and social platforms.

By contributing, you help create a more personal, connected community, while also advancing scientific research. Patient experiences play a critical role in shaping research priorities, improving understanding of rare cancers, and accelerating more personalized approaches to care.

Your story has the power to inform, connect, and drive progress.

Submit your story or photos here: https://rarecancer.org/story

Rare cancers are not rare in impact.
Together, rare cancers account for 1 in 4 cancer diagnoses, yet they have historically been underrepresented in research and data.

The Rare Cancer Research Foundation is bringing together fragmented clinical and genomic data from patients with rare cancers, to make the “rare” visible at scale. With your help, our work accelerates research for better answers and better outcomes.

Rare cancer patients shouldn’t have to feel rare when it comes to care, options, or hope.

Community hospitals and academic medical centers play a powerful role in changing that and can help accelerate discoveries that simply wouldn’t happen otherwise.

Every patient matters. Every sample matters.

Let’s work together to ensure that no rare cancer patient is left without a path forward. Contact us at [email protected] to learn more.