Cure SMA - OKI Chapter

Incredible news for the SMA Community!

Biogen today announced that it has received approval from the U.S. Food and Drug Administration (FDA) for the High Dose regimen of SPINRAZA to treat people living with SMA. With broad label approval for all those living with SMA, this is an excellent result for the SMA community.

This FDA approval marks another important step forward in the ongoing effort to treat and manage SMA. The High Dose regimen of SPINRAZA has the potential to provide additional benefit for those currently receiving treatment, offering new possibilities for improved outcomes and quality of life. Cure SMA is committed to working closely with Biogen, healthcare providers, and the SMA community to support timely education and access to this new dosing option, in alignment with its approved use.

To learn more, please visit: https://www.curesma.org/biogen-receives-fda-approval-of-high-dose-spinraza-for-the-treatment-of-sma/

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Calling all runners! Cure SMA is thrilled to be a participating charity of the Flying Pig Marathon in Cincinnati, OH! Runners have the option of running a 5k, 10k, Half Marathon, Full Marathon, or Open Relay. Whether you’re an experienced runner or want to try something new, the Flying Pig Marathon has options for you.

Are you or someone you know interested? Use the link in our below to register and learn more 💜🧡

https://endurance-curesma.donordrive.com/FlyingPigMarathon

Reminder: You can win a $150 gift card of your choice, just by registering (FOR FREE) for our SMA Walk-N-Roll. Get yourself and family registered TODAY! Increase your chances of winning by fundraising! For every $50 raised, you get an extra entry. The drawing will be on Monday, March 16th. The date of the Walk-N-Roll is Saturday, May 30th (Registration at 12 noon, Opening Cermony at 1 PM) at Xavier University's Cintas Center. Check out the flyer for additional information! Make a difference today!