Herscot Center for Tuberous Sclerosis Complex
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Tuberous sclerosis complex, or TSC, is a genetic disorder with a wide range of symptoms that can affect people from birth through adulthood. The disorder is caused by a mutation in one of two genes, TSC1 or TSC2. A mutation in either of these genes interferes with the body's ability to control cell growth and division. The disorder can occur sporadically as the result of a spontaneous mutation, or
11/06/2025
Listen to Dr. Thiele talk about epilepsy and her new book, Epilepsy for Dummies, on Talk About It with Greg Grunberg!
https://www.youtube.com/watch?v=OEdoGXpCRSY
https://www.youtube.com/watch?v=fIVU5x_QcScerg
S0516: Epilepsy For Dummies - The Podcast Interview - Part II In another inspiring episode of "Talk About It with Greg Grunberg," Greg sits down once again with Dr. Elizabeth Thiele and Lauren Aguirre, co-authors of Epi...
06/24/2025
We’re gearing up for the Sunflower Syndrome conference on Sat, July 26 - only 32 days away! Book your tickets now to gain insights from experts, hear the latest updates on the condition, and connect with other families.
Secure your spot: https://because.massgeneral.org/event/2025-sunflower-syndrome-family-symposium/e664277
09/16/2024
On Saturday, October 5, you will hear from the Carol & James Herscot Center for TSC clinical social worker, Leigh Horne-Mebel. Leigh often helps people cope with anxiety, depression, concerns about relationships, and concerns about decision making. She will be sharing information about TSC-Associated Neuropsychiatric Disorders (TAND) from the perspective of a social worker.
To purchase a virtual ticket, go to: https://because.massgeneral.org/event/2024-herscot-center-for-tsc-virtual-conference/e591960
09/09/2024
As a nurse, Erin helps offer hope, support, consistency, and a sense of calm in a world where having a child with complex medical needs may be chaotic. She loves the opportunity to create a relationship with patients and families. Every patient is unique, and she learns from each patient she encounters. At this conference, Erin will be speaking on TSC-related research projects occurring at the Carol & James Herscot Center.
To purchase a virtual ticket, go to: https://because.massgeneral.org/event/2024-herscot-center-for-tsc-virtual-conference/e591960
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Massachusetts General Hospital
Boston, MA
02114
