ALS Research Ambassadors

Please join us on Thursday, 3/12, at 5:00 pm ET for an expanded access discussion featuring Jinsy Andrews, MD, MSc of NYU Langone Health and representatives from Clene Nanomedicine. They will provide an update to the community on the CNM-Au8 EAP.

Register:
https://mgb-org.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw #/registration



Northeast ALS Consortium (NEALS) ALS ONE I AM ALS EverythingALS Les Turner ALS Foundation Muscular Dystrophy Association ALS TDI The ALS Association

📅 Date: Tuesday, July 29
🕐 Time: 1:00 PM ET
📍 Open to all — registration required
🔗 Register here: https://neals.org/people-living-with-als/educational-webinars/end-of-life-autonomy-a-conversation-on-als-and-medical-aid-in-dying

This webinar will address the broader context of end-of-life autonomy and the unique considerations for those living with ALS.

📅 Date: Tuesday, July 29
🕐 Time: 1:00 PM ET
📍 Open to all — registration required
🔗 Register here: https://neals.org/people-living-with-als/educational-webinars/end-of-life-autonomy-a-conversation-on-als-and-medical-aid-in-dying

Still time to apply!

We are excited to announce that applications are now open for the 2025 in-person ALS Clinical Research Learning Institute® (ALS CRLI), taking place October 6–7, 2025, in Clearwater, Florida.

The ALS CRLI is a two-day, immersive program that equips individuals impacted by ALS—including people living with ALS, caregivers, and family members—with the knowledge and tools to engage meaningfully in clinical research and the therapy development process. Participants who complete the program become ALS Research Ambassadors, joining a growing network of advocates working to improve and influence ALS research.

We kindly ask that you share this opportunity with your networks. Eligible applicants must:

-Reside in North America

-Not have attended a previous ALS CRLI program

-Have a connection to ALS

The application deadline is July 14, 2025.

You can learn more at NEALS.org

Apply Here: https://www.surveymonkey.com/r/CRLI2025