Open Humans Foundation

Open Humans Foundation

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The PinkDrive USA
The PinkDrive USA

The Open Humans Foundation is a 501(c)(3) nonprofit organization dedicated to making a wide spectrum of data about humans accessible to increase biological literacy and improve human health.

Preserve personal freedom in networked societies 09/01/2016

"Scientists can contribute to ensuring that the loss of privacy through technology does not result in loss of personal freedom. First, they can credibly assess current and future privacy risks of new technologies and stress the need to move beyond the unsustainable concept of data protection by secrecy. Second, they should advocate for robust legal protection against discrimination around the world. Third, they should educate, advise and monitor, to make sure that facts — not fears — dominate the political debate."

Christoph Bock is a principal investigator at the CeMM Research Center for Molecular Medicine of the Austrian Academy of Sciences in Vienna. He is also a Project Leader at Genom Austria, a member of the Global Network of Personal Genome Projects. His thoughtful commentary on data protection sheds light on the true dangers of privacy loss, and offers suggestions for how to deal with its potential impact.

Preserve personal freedom in networked societies Broad anti-discrimination laws and practices could compensate for failing data protection and technology-linked loss of privacy, says Christoph Bock.

Research Associate at University College London 06/06/2016

Job opening!

PGP-UK (London) seeks postdoc in bioinformatics, statistics or computer science to start Oct 1 and focus on complex trait analysis. They are looking for someone with experience in integrative analysis of multidimensional data, plus a track record of leading a project from conception to publication.

http://www.jobs.ac.uk/job/ANV032/research-associate

Research Associate at University College London View details for this Research Associate job vacancy at University College London in London. Apply now on jobs.ac.uk

Timeline photos 02/29/2016

The 2016 GET Labs/Expo for Researchers, April 25th at Harvard's Martin Conference Center, will include a forum for people with solutions and experience in participatory research to come together.

We're delighted to be hosting

LifeMap

LifeMap Solutions empowers mobile health studies and accelerates translation of their findings into innovative digital therapeutics. We partner our experience of consumer behavior, app analytics, and design with Mount Sinai’s world-leading expertise in health research to conduct the Asthma Health ResearchKit study. Large-scale patient-directed studies which capture real-world outcomes in real time will reveal trends and effects that were once invisible in small-scale traditional asthma research studies. Come talk to us about how we can work together to use mobile technology to better understand and improve health.

Check out more on GET Labs, the GETy Awards, and the entire GET Conference at http://www.getconference.org/

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