NKH Crusaders

Some conversations only make sense with people who have lived a similar experience.

Join us Thursday, June 18 at 8:00 PM EST for Rare Connections. Connect with fellow caregivers, share your experiences, exchange support, and spend time with people who understand the unique challenges of rare disease caregiving.

Register here: https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

Since our April 6th launch we have more than 50 families enrolled in the Citizen Health registry.

Our Goal is 100 families, in 100 days! That means we have 40 days until July 15th, so we need your help to achieve our goal! Please share, enroll, or help a friend enroll! The process is so easy, just create an account and follow the prompts!

NKH Crusaders is finally on Instagram! Can't wait to see you over there!

NKH Crusaders Research and Patient Advocacy Organization