The Adeno Project

If you also have been diagnosed with Endometriosis, when was Adenomyosis brought up to you as a possibility? Was it after it was found or suspected due to imaging, presentation on exam or surgical finding? Was it due to uncontrolled symptoms? Was it after excision of Endometriosis?

Not only do the symptoms overlap with Endometriosis but they overlap with many other pelvic pain and gynecological conditions. Many patients have more than one of these conditions as well, adding to the challenge of treatment and diagnosis

It’s important to note the overlap in symptom presentation and that symptoms may be from both endometriosis AND adenomyosis. This needs to be acknowledged more so that patients are aware that Adenomyosis is a possibility regardless of age

The non-surgical options are similar as well: focusing on symptom management such as pain relief +/or bleeding with hormone therapies

Can you relate? 💜

Our voices matter, and we deserve to be represented. We deserve to have more information available regarding our disease, treatments and support available. We deserve hope and to be heard. April is just a small glimpse into the advocacy that happens year round, and will continue in hopes to bring further attention to this devastating disease that impacts so many silently. Not because the symptoms are silent, but because we are being ignored & forgotten. Your voice matters and is so valuable in what ever capacity you can advocate for. That includes simply sharing, liking, commenting and supporting us and others advocating for better care. I surely will not stop and have been a bit quiet during this month due to other circumstances, including working on long term plans for how I can take my advocacy to the next level. I would love to have others to collaborate with & build this collective effort with

Source: Tellum, T., Munro, M.G. 2022

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