Gladiator X Project

Yesterday… March 26th (International Epilepsy Awareness Day).

“March 26, known as Purple Day or World Epilepsy Day, was created in 2008 by then 9-year-old Cassidy Megan of Nova Scotia, Canada. Motivated by her own struggles with epilepsy, she aimed to raise global awareness, dispel myths, and assure those with the condition that they are not alone.” “The color purple was chosen because lavender is recognized as the international flower of epilepsy.”

In 2016 as I was trying to connect so many dots with Xavier It turned into a tangled web that never untangled. But Him living with an incurable progressive form of epilepsy (LGS) was NEVER a thought for I knew very little about epilepsy.

10 years later … Purple day … now resonates with me with meaning and growth.

We have been humbled and given GRACE.
Simple days are RICH in meaning.
Xs heart of gold teaches pure forgiveness
We learn FROM him
His world is not tainted with stigmas nor symbolism
He navigates life with feeling

Is it HARD? Yes, it is exhausting but it’s part of the journey. We are a family and we keep it REAL.

Beyond grateful for the quality of his days.

I’ve never asked WHY but rather HOW can we help.
GXP was a feeling and now it’s own 501(c)3
We will continue to help those on their journey. It will take time for insurance companies to understand, value and cover the cost of seizure alert devices. We will continue to help. We understand so many of the unpredictable costs that parallel a journey of such uncertainty.

Epilepsy is rarely talked about nor recognized.
As a community we can do better ⚔️



epilepsy

RARE Disease Day 2/28/26

70% OF GENETIC RARE DISEASES START IN CHILDHOOD

Rare Disease Day
Rare Epilepsy Syndromes

Thank you for the explanations (pics)

RARE DISEASES CURRENTLY AFFECT 5% OFTHE WORLDWIDE POPULATION



Every year on the last day of February (either the 28 or 29
February-the rarest day! *), the world comes together to raise awareness for the 300 million people living with a rare disease.

Since 2008, Rare Disease Day has grown into a truly global movement. It brings together patients, families, caregivers, researchers, clinicians and advocates — a community standing side by side.

Rare Disease Day matters because too often people living with rare diseases are unseen and unheard. This day shines a light on them, their stories, and their urgent need for equity in healthcare and social opportunities.
You can be join this movement by spreading awareness, illuminating landmarks, sharing personal experiences, calling on policymakers, and starting conversations that matter!

International Epilepsy Day 2026 …. Monday 2/9/26
is always celebrated the second Monday in February to raise awareness about Epilepsy⚔️

I loved reading through so many posts to raise such awareness on a topic that’s rarely talked about nor recognized.

post hit home. We know that our Xavier falls into the high risk category of dying from SUDEP. We do sleep at night knowing we will be notified of Xavier’s prolonged seizures requiring intervention. Xavier has taken ownership of his watch always making sure it’s been charged before he lays down for the night. Thank YOU .

remains committed to raising awareness & education around SUDEP through the distribution of seizure alert devices.

Please read post below:

Millions of people worldwide live with epilepsy, and behind every diagnosis is a person, a family, and a community navigating daily life together. Epilepsy can also carry serious risks, including SUDEP, which is why awareness, understanding, and the right support matter so deeply.

Yesterday’s International Epilepsy Day was a moment to raise awareness, challenge stigma, and stand together for better care, safety, and inclusion but the work continues well beyond a single day.

At Empatica, supporting the epilepsy community is at the heart of what we do. Our work focuses on helping people live with greater confidence and peace of mind, through research and technology that reflect real life, including:
Research exploring whether seizures can one day be predicted, with the goal of supporting more timely care.

EPlstress, a recently published study using Empatica’s E4 device to explore how stress and everyday experiences may relate to seizures, captured through real-world data.

Epilepsy is about more than seizures alone; it can affect sleep, stress, and everyday moments.

Looking ahead to 2026, we remain committed to advancing epilepsy research and supporting patients and loved ones through tools like EpiMonitor, designed to help detect possible seizures and alert caregivers when it matters most.

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🖤🩶🤍Happy Holidays to ALL🖤🩶🤍

Embrace the love of those around you allowing it to overflow into the new year.