Aniridia Network
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We are a support group concerned with the rare genetic condition aniridia – which causes a lack of irises (the coloured ring) in the eyes and poor vision from birth. Our values are:
• Positive
• Informative
• Specialised
• Inclusive
• Supportive
• Approachable
Our beliefs are:
• Every person with/associated with aniridia:
o has their own story to tell and something and unique to contribute
o
21/06/2026
Do you or your dad have aniridia?
Got a fun or touching story to tell about your dad relating to aniridia?
We want to hear it:
Tell it on the Aniridia Day group in text and pictures or on video to celebrate your !
Share it to your own feed for your friends and family to see.
As today is both and Aniridia Day, we’re all telling stories about both subjects.
21/06/2026
Today is Aniridia Day 💙
Together, we raise awareness, strengthen support, and advance care for people living with aniridia.
See potential. Support possibilities. Protect vision. Intervene wisely.
By improving knowledge, encouraging collaboration, and advocating for better care, we can help build a brighter future for everyone affected by aniridia.
Tell your fun or nice story to mark 21 June
18/06/2026
ERN-EYE Webinar - Congenital aniridia PAX6 and differential diagnosis - ERN-EYE ERN-EYE Webinar - Congenital aniridia PAX6 and differential diagnosis Date & time Tuesday 23 June 2026, 6.00 pm CEST. Moderators Pr Dominique Bremond-Gignac & Dr Susana Noval Programme & Speakers Congenital aniridia PAX6 related phenotype overview, Pr Dominique Bremond-Gignac MD, PhD, Department of....
18/06/2026
Sign up at https://aniridia.org.uk/2026/06/14/parenting-and-aniridia-online-meet-up/
Click here to claim your Sponsored Listing.
Category
Telephone
Website
Address
Sheffield
