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ill post some exclusive offers that will benefit everyone, for every product purchased, I will donate £1 to cystic fibrosis trust which is my teams chosen charity. I will also post updates of the money raised. My team have chosen CFT as our chosen charity and we are raising money to support people like Jack. The best person to explain jacks condition is his mum, these are her words
Our son Jack is 15 years old and he was diagnosed with Cystic Fibrosis (CF) when he was 3 ½ years old. CF is a life limiting inherited condition that affects the lungs and digestive system which creates a range of challenging symptoms. Jack requires care and treatment on a daily basis to help manage his condition; currently Jack undertakes the following:
Physiotherapy – minimum of twice a day taking up to 20 mins each session – this can be increased during periods of being unwell. This is done to try and help clear mucus from his lungs. Medication – Nebulisers – 5 lots of nebulisers each day – 2 in the morning / 3 in the evening each lot taking 5/10mins. Tablets – morning – 9 various tablets including 2 antibiotics and various vitamin pills – evening – 5 various tablets including antibiotics. On top of these tablets, he also takes tablets with most foods – dependant on the fat/protein content of meals and snacks – some meals require up to 20/25 more tablets to help digest his food. All of his medication is required to try and help him gain weight and prevent him from becoming unwell and getting chest infections which cause lung damage. Jack has to attend hospital on a regular basis to be monitored and to check his lung function levels. Jack is currently on a 12/18 month period of IV’s (intravenous antibiotics); he is growing 2 different bugs in his lungs which need to be treated every 3 months by a 2 week course of IV’s. It is unlikely that these antibiotics will clear these infections, more likely just make them more manageable. For many people a double lung transplant becomes the only option, this in itself can bring a whole other set of risks. Fortunately we are not yet at this stage with Jack. CF can cause other related conditions such as diabetes and osteoporosis. Jack currently is not affected by these. There Is currently no cure for CF, each week 2 people die from CF related conditions. When Jack was diagnosed we were ignorant to what CF was and totally freaked out by what we were told initially. What were we going to do? Keep him wrapped in cotton wool, don’t let him out, make him live his life in a bubble so as not to come into contact with any bugs? What life would he have if we chose this for him? We fight his condition with him every single day of our lives, we do everything possible and within our reach to help him manage what ever he is having to deal with. From one hospital appointment to the next.. From one lot of iv’s to the next.. From one bug to the next.. We will do anything possible to help Jack remain well and happy and living his life to the max! It tears us apart to think we together gave him the cruel challenging life destroying illness. This video link illustrates how important it is to continue to raise money for CF
https://m.youtube.com/watch?feature=youtu.be&v=2B3X8GuOyAc