LAM Action

London Marathon 2026 First LAM Action runner to finish - well done Marcus West

Good luck to our amazing runners on Sunday! They all have a personal connection to a LAM patient so anything you can give in sponsorship will make a big difference - thank you!

Eleanor Fairbrother:
https://2026tcslondonmarathon.enthuse.com/pf/eleanor-fairbrother

Jonathan Smith:
https://2026tcslondonmarathon.enthuse.com/pf/jonathan-smith

Rachel Stinton:
https://2026tcslondonmarathon.enthuse.com/pf/rachel-stinton

Marcus West:
https://2026tcslondonmarathon.enthuse.com/pf/marcus-west

Leagh Callow:
https://www.justgiving.com/page/leagh-callow-4

This opportunity is open to LAM patients around the world, including the UK!

Grant Study Section Patient Voice Committee

Applications are now open to join the Patient Voice Committee (PVC). PVC members will review grant proposals alongside scientific reviewers, provide feedback from a patient perspective, and vote on which studies to fund. The PVC ensures the patient voice is heard and that research remains focused on studies that will most impact those living with LAM.

Details:

Who: 3 patients will be selected (US and International)

Commitment: 25-30 hours per year

Term: 3 years

Interested? If you are active in the LAM Community and want to shape the future of LAM research, we want to hear from you!

Learn more and apply: https://www.thelamfoundation.org/take-action/gss-patient-voice-committee/

They made it! Huge congratulations to Harriet Davidson, her husband Adam and best friend Lauren Weetch for battling through the pain barrier and completing 4 marathons in the space of 4 days to raise funds and awareness for LAM Action.

“We climbed over 2500m of altitude over the course of the four days, despite all of our aches and pains and blisters, had long and isolating moments on the Imber range and Salisbury plain, but the true determination and support from donations, positive messages and kind strangers truly got us through.”

An awesome achievement – well done to you all!

And they’re not stopping there – a charity quiz on Friday night will keep the fundraising going, with an incredible amount of approximately £8,000 raised so far! Big thanks to everybody who has supported their fundraising, if you would like to help, please visit the link below:

https://www.justgiving.com/page/harriet-saunders-3?utm_medium=FR&utm_source=CL&utm_campaign=021&fbclid=IwY2xjawQSVFRleHRuA2FlbQIxMABicmlkETBNY2doakhUbVRtejRxcDNOc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHtrZWnDCBbzcLUqI4F_P41F1kA-Onc4Z_wxhJB-NHctGbci9b-wzZIxxDRrA_aem_nJZAPl01PLGyAXOQFhQfnw

Well done again and thank you from all of us at LAM Action.