Definitely Not The Waltons
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Aiming to raise awareness of all things undiagnosed and special needs with a few laughs a long the way.
10/12/2025
10 years ago today we embarked on the ... it feels so strange knowing how amazingly far genomics has come in a comparatively short space of time & yet still not having any definitive answers for our gorgeous girl. We know the names/diagnoses of various individual conditions but not the overarching diagnoses- the best way I can describe it is like having all the spokes of an umbrella but not the "wrapper" bit that keeps you dry! Still it doesn't change who she is or define her and how far she's come. She turned 17 2 days ago and we couldn't be more proud of her or delighted in seeing her living her life
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The Savoy Hotel, 100 Strand, London, WC2R 0EZ
London
