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Raising the Voice of NTM-PD Patients – ENPADE Survey Findings Published

We are proud to share that the results of the European NTM Pulmonary Disease Patient Disease Experience Survey (ENPADE) have now been published in BMC Pulmonary Medicine: Read the paper. A summary report is also available: www.ntmpatientsurvey.eu.

Living with non-tuberculous mycobacteria pulmonary disease (NTM-PD) presents many challenges and the burden of disease is substantial. Until now, patient experience data on NTM-PD has been limited.

The ENPADE survey, conducted across eight European countries, gathered input from 543 NTM-PD patients and provided valuable patient insights into:
✔ How NTM-PD affects patients’ daily lives and activities
✔ The burden of disease and unmet needs
✔ Barriers to accessing medical care and gaps in healthcare

We find it most important that the voices of patients are heard and recognized in decision-making processes, ensuring that healthcare advances in a way that matters most to patients.

Our sincere thanks to all participants for their time and willingness to share their experiences.

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Sondaggio online per la Bronchiectasia da Fibrosi Non Cistica (NCFBE) Aiutate i ricercatori a capire l'impatto quotidiano della bronchiectasie da fibrosi non cistica senza fibrosi cistica (NCFBE). Stanno cercando adulti che vivono con la bronchiectasia (senza fibrosi cistica), nota anche come NCFBE, e i loro familiari per rispondere a un sondaggio online. Le sue risposte possono favorire il cambiamento e aumentare la consapevolezza. Se conosce una persona che attualmente soffre e sostiene i sintomi della NCFBE e che ha avuto almeno una riacutizzazione (esacerbazione) della bronchiectasia nell'ultimo anno, potrebbe essere idoneo. Si impegni ora per contribuire a una migliore comprensione della bronchiectasie.

Going to ISPOR Europe 2024? 💡 Join us for an insightful Lunch & Learn session on the Joint Clinical Assessment (JCA) under the EU HTA regulation! 🚀

In collaboration with Justin Stindt Consultants , admedicum will explore the JCA's impact on access to medicines and how will play a significant role. This event promises valuable takeaways for people working in Market Access, HEOR, and Clinical Development professionals.

📅 Don't miss out – secure your spot here: https://www.eventbrite.de/e/joint-clinical-assessment-lunch-learn-by-justin-stindt-consultants-and-admedicum-tickets-1046773597007?aff=1