Totallyfunkless

Totallyfunkless

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05/23/2026

Sigh. The comments that get old real quick.

Photos from Totallyfunkless's post 05/21/2026

May 21 is an incredibly sad & difficult day for me.

May 21, 2021 — my best friend Karn passed away.

May 21, 2024 — my best friend Casey passed away.

May is so hard. I miss my friends so incredibly much. They were bright lights and they are so greatly missed by everyone that knew them.

Death and grief are hard. I’m still grieving everyone I’ve lost and I will forever. I try to honor them when I can, because they don’t deserve to be forgotten. Ever. These two humans were such good friends, people, and were people I felt extremely close to.

I miss you, Karn and Casey. Forever. I love you. 💖

05/19/2026

I just learned that today is World IBD Day!

Although my IBD isn’t active currently, I did go through hell when it was.

I have Microscopic Colitis. The flares were not something I would ever miss. Nights spent on the bathroom floor, curled up praying it would end and the weakness that followed.

My diagnosis process wasn’t too long, but the 8 week flare in 2022 felt never-ending. I had no idea what was going on and it was scary.

After a biopsy during a colonoscopy, I was diagnosed. I tried some treatments that barely worked, but then when I started Remicade in late 2022, it targeted my MC as well. Thank god.

I’ve been flare free for a few years now and I feel so incredibly lucky. 💖🫂

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