Ontario Rett Syndrome Association

📣Invitation to participate in a survey-Communication Support for People with Rett Syndrome in the US, Canada 🍁 and South Africa

· Are you a Speech and Language Therapist/Speech Pathologist/Speech-Language Pathologist or other professional who supports communication?
· Do you work with children or adults with Rett syndrome?
· What shapes your practice?
· Where do you find support and guidance?
· Have the Rett Syndrome Communication Guidelines helped you or have you not heard of them?
· Have you participated in any of Rett association’s activities, or not felt they were for you?
· What works and what would you change?

If you live and work in the US, Canada or South Africa you could answer these questions and more in our survey.

This project is led by Dr Gill Townend, lecturer at the University of Reading, research lead at Rett UK and lead author of the Rett Syndrome Communication Guidelines.

By listening to your experiences, we hope to further develop support for communication professionals working with people with Rett syndrome in the UK. We can’t do it without you!

Full details can be accessed via the link below or by scanning the QR code. The survey can be completed on your computer or mobile device. https://redcap.link/ctw5ao2m

Closing date: 15th July 2026

If you have any queries, please contact: [email protected]

Many thanks to, Taysha Gene Therapies, for sponsoring a gold level package! We appreciate your support.