Scleroderma Canada

I was diagnosed with Diffuse Systemic Scleroderma in April of 2016, just over ten years ago now.

The effects of Scleroderma and Raynaud’s has been life altering.

Raynaud’s is constantly with us all day and night and varies with intensity depending on many conditions, like temperature of the weather, how well we are feeling and intensity of stress internally or externally.

There are certain relaxation and stress techniques to help stress like yoga and exercise, which can help some.

I personally have found heated gloves in the winter is a must and I could not be without them. Extra coats, lined pants, wool sweaters and warm hats and boots are also very helpful. I now take extra clothes everywhere, all year, as things can change in a minute. Some of the extra things I use are heated bean bags and electric charged hand warmers.

Someone looking at me would not have any idea that just going in to a grocery store or a
building in the summer can be difficult because of air conditioning.

Raynaud’s is just one of a list of conditions we may have at the same time with Scleroderma.

Ken.