Rare Artist
The Rare Artist Program, powered by the EveryLife Foundation for Rare Diseases, provides a national platform for artists to advocate through visual artwork, music, poetry. The Rare Artist Program was established in 2010 to exhibit the unique gifts of individuals with, or affiliated with, a rare disease to tell their story through art. Now in its 12th year, the Rare Artist Program is focused on pro
🎬 Did you know Rare Artist has a new accepted medium, short-form video?
Videos may be up to 5 minutes and could be:
🎥 A mini documentary
🎞️ An animation or stop motion film
📱 A glimpse into your daily life
✨ Your rare disease story, authentic to you
As a special opportunity, top videos may be invited to be featured on the Disorder Channel, with artist permission.
📅 Enter by July 20 at RareArtist.org
06/18/2026
🎨 Big news! Rare Artist, a program of EveryLife Foundation for Rare Diseases, has launched its first exhibition at Children's National Hospital in Washington, D.C.
Featuring artwork from 30 Rare Artist awardees, the exhibit highlights how children, teens, young adults, and caregivers use art to share their stories and advocate for the rare disease community.
Local to the D.C. area? Join an artist reception on August 1. Contact [email protected] for details!
Want your artwork featured in a future exhibition? Entries for Rare Artist 2026 are now open at RareArtist.org!
06/16/2026
Apply for the scholarship now — http://rareartist.org 🔗
Calling all rare artists 🎨✨ The Rare Artist program by the EveryLife Foundation for Rare Diseases is giving artists impacted by rare disease a platform to turn creativity into advocacy. From visual art and poetry to music, this program celebrates the powerful stories within the rare disease community. 💜
Selected artists can receive mentorship, advocacy coaching, national recognition, monetary prizes, and the opportunity to showcase their work during Rare Disease Week on Capitol Hill in Washington, D.C.
Your story matters. Your art matters. Your voice deserves to be seen and heard.
Tag a rare artist below or share this with someone who should apply. 🎭🖌️🎶
06/08/2026
🎨 Share your story. Advocate through art.
The 2026 Rare Artist Contest, powered by the EveryLife Foundation for Rare Diseases, is now open! 10 awardees will have their work showcased at Rare Disease Week on Capitol Hill in 2027, receive a cash prize, and more.
Categories include 2D Art, 3D Art, Digital Art & Photography, Poetry, Music, and Short Video.
Learn more and enter by July 20: RareArtist.org
05/18/2026
Register today!
Join us on Thursday, May 21, at 2 PM ET for an Rare Disease Legislative Advocates Share Your Story webinar. Attendees will learn how to share their story through art.
Three rare artists will lead the conversation:
DaNice Marshall, In Someone Else’s Shoes
Zanny Nicholas, Alive Again
Solana Acuna, PrismOfLove
In addition to the presentation, there will be a Q&A session with the rare artists, and a segment about how to write your artist statement with Stephanie Riordan, our Senior Director of Patient Programs. For Stephanie’s segment, please have paper and writing utensils or a digital tablet for this activity.
We look forward to seeing all of you there! Please register here: https://hubs.li/Q04gQDqM0
🎬 Lights. Camera. Advocacy.
Introducing the newest medium for the 2026 Rare Artist Contest: 🎥 Short-Form Video (5 minutes or less)
10 Rare Artist Awardees will be recognized, with at least one in each category, as well as a Rising Artist under 18.
Categories:
2D Visual Art • 3D Material Art • Digital Art & Photography • Poetry • Music • Short-Form Video
Rare Artist opens June 8. Learn more at RareArtist.org.
Start rolling 🎥
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