Running4stevienick
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#running4stevienick started with a simple mission, run for those that can’t.My nephew was born with PMD-Leukodystopphy (Pelizaeus-Merzbacher) which is a genetic disease of the central nervous system and spinal cord. Running4stevienick was created in honor of my nephew Steven Nick, diagnosed with PMD at an early age, advised his life expectancy would be short this December we will celebrate his 30t
Help me wish a happy birthday to the one and only Steven Nick - love you
12/09/2020
Holiday cheers are being mailed today !! Thank you PMD Family Support for all you do in supporting families all over the world. Check out this cool word cloud representing locations of those being supported
09/07/2020
It’s week 2 of Luekodystrophy Awareness month !! Don’t forgot the awesome chance to win a new pair of Apple AirPods AirPod Pros !! That right PROS.
HOW:
1. Simply make a minimum $5.00 donation to www.PMDFAMILYSUPPORT.COM each additional $5.00 is an additional entry.
2. Like page comment done and share - that simple
Happy Labor Day - lets share some love for Stevie Nick !!
PMD Family Support We strive to provide support for families whose child/children have been diagnosed with Pelizaeus-Merzbacher Disease. We do this by offering an internet support group as well as hosting an annual family support conference for these families.
Click here to claim your Sponsored Listing.
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