Tbc1d24 Foundation

We're one month away from the 🚴‍♀️🚴 The Million Dollar Bike Ride for Orphan Disease Research ‼

Help us reach our fundraising goal for much needed research 🧬all contributions are doubled up to $30k! This is an amazing opportunity for our !

Link here 👉👉 https://charity.pledgeit.org/t/OHzsTEONbl

The Million Dollar Bike Ride is our largest fundraiser as the money we raise is matched up to $30k - this is HUGE for our small, rare gene mutation 🧬 and pivitol in getting us the attention and funds we need for research.

If you haven't signed up to ride or donated yet - please do here 👇👇
https://charity.pledgeit.org/t/OHzsTEONbl

And share with all your family and friends 😉

Watching your child have seizures that nothing seems to stop is horrifying and heart breaking💔

So we get excited when people try to find ways to support drug resistant epilepsy! Thank you to the Pediatric Epilepsy Research Consortium for sharing 💜

Link to study👉https://onlinelibrary.wiley.com/share/HQ4UQKAAH2W8E6DKMINB?target=10.1002/epi4.12902

"We surveyed 32 pediatric epilepsy centers in USA to highlight current practices of intracranial neuromodulation. Of the 17 that replied, we found that most centers are implanting thalamic targets in pediatric drug-resistant epilepsy using the RNS device. DBS device is starting to be used in pediatric epilepsy, especially after 2020. Different strategies for target identification are enumerated. This study serves as a starting point for future collaborative research"