TOF Warrior Princess

Zelda had her cardiology appointment this morning and it was definitely one to remember!!

I’ll start by saying she is such a little boss babe sitting through all her tests like a champ and being her bubbly little self. 🙌🏼

Okay so down to the nitty gritty… Dr. Brown said that as far as they can see there is no narrowing, the leaky valve is still minimal and pressures are the same as they were at her post-op appointment which are all GREAT signs. (She has never NOT had narrowing issues after a surgery so this is major.)He said she looks so great and that he is very pleased with her activity level. He wants to see her again in 6 months and go from there. He is so comfortable with her stability that he doesn’t feel like a cath is necessary at the moment. 😱 We will just continue to monitor her at home until her next clinic appointment. This is huge. We are so grateful.

We are in shock still a little bit because this has been the most positive cardiology appointment we have had to date. We could not be more blessed. 🖤

Also, Zelda received her Make-A-Wish certificate so she will be making her wish in the very near future. This little warrior is so deserving; she has been through so much and still has the most positive outlook on life. 🤩

Please, as always, send Zeldy all the thoughts, prayers, positive vibes, love and light. They are so appreciated.🖤🫀



💔💪🏼🌺

Well I know it’s been a long while since we have posted and today is World Heart Day, so I figured I would give a little update on Miss Zeldy Lou. ❤️

Zelda turned FOUR on September 19th and enjoyed very much being the center of attention for a day. 🎂🥳 She has been so full of energy and her tiredness is more infrequent than ever which is such a good sign. She is constantly moving and exploring. She is fulfilling all of her little sister duties by being a complete pain to her big sisters and is starting to accept her role as a big sister begrudgingly. 😹 (No, she really is starting to like having a little sister and friend.) She has had no issues since coming off of continuous oxygen and has needed 🚫NO O2 assistance🚫 since March.‼️ It’s incredible. She is pink, satting beautifully and has been doing great. This child has defied all the odds and continues to do so. We are so so thankful for all of the positives. We weren’t sure at first that we would make it this far but thanks to the absolutely amazing cardiology team, nurses, PICU team and staff at Children’s Memorial Hermann this kid is thriving. 🙌🏼

Our follow up cardiology appointment has been rescheduled to October 22nd so we will have a more concrete physiological/ plan of care update after that. We are anticipating a heart cath sometime toward the end of the year and then hopefully minimal intervention for maintenance for a while. 🤞🏼🤞🏼

Will definitely post an update following her appointment! Until then, as always, please keep her in your thoughts and prayers and send us all the good vibes, love and light. 🖤 We are so grateful for y’all!

Thinking of the Harlow family tonight. 💔 Prayers for peace for her mom, dad and brothers. ❤️

RIP Jillian