Fight With Nathan
When I was 23 days old, my dad and mom rushed me to the hospital because I had intense abdominal pain and I vomited a huge amount of milk. My skin turned yellower as the hours passed and my stool got darker until blood came out. I didn't know that I was already experiencing an acute intestinal malrotation and severe infection in the blood (sepsis). The good news is that the doctors were able to sa
06/25/2025
Passport renewal: DONE!! 🙌
After multiple attempts since October 2024, we finally got this done. Nathan’s health hurdles kept pushing the date back so this is huge sigh of relief especially with the expiration just 2 weeks away. Thank you, Lord God!
This brave boy powered through the blistering heat and humidity with a GJ tube (each with its own drain), a Gordon drain, a wound vac, and TPN with lipids - all while dealing with low endurance and pain from the drain suture site. (This photo was even taken before he was fully connected again to his 3.6L IV nutrition and lipid bags!)
Whew. That was a lot of driving back and forth between Chicago and Cincinnati and so much careful maneuvering with all his lines and equipment. But we got it done and even squeezed in a Jollibee lunch and a quick trip at The Bean.
Thank you, Lord God. These “happy problems” mean living our new normal at home and not in the hospital until it’s time once more for transplant.
Here’s to more family road trips and moments outside the hospital walls!
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