International Rett Syndrome Foundation

International Rett Syndrome Foundation

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Guided by families & experts worldwide, we fund trailblazing research seeking treatments and a cure, empowering support that helps families cope and offers hope, and increasing awareness of Rett. As the leading Rett syndrome research and advocacy organization, the International Rett Syndrome Foundation builds upon our 40-year commitment to breakthrough discoveries and life-changing advancements in

Photos from International Rett Syndrome Foundation's post 04/27/2026

Don't miss our first session of Rett in Focus, a new IRSF webinar series designed to give the Rett syndrome community a closer look at specific treatments, clinical trials, and therapeutic developments.

Join us tomorrow at 6 p.m. ET for an overview of DAYBUE® STIX (trofinetide), moderated by Dr. Dominique Pichard, Chief Scientific & Medical Officer at IRSF. This session will explore how DAYBUE was studied, what clinical trial results showed, possible side effects, and how DAYBUE STIX may offer added flexibility within the treatment experience. DAYBUE or DAYBUE STIX are prescription medicines used to treat Rett syndrome in adults and children 2 years of age and older.

To learn more and register: https://us02web.zoom.us/webinar/register/WN_fVvRD4ojTUmF5--BbJyVMA

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Please read the full Prescribing Information: https://daybue.com/daybue-pi.pdf, including Patient Information:https://daybue.com/daybue-patient-info.pdf

Presented in partnership with Acadia Pharmaceuticals

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