Beautifully Made Community

Discovering that powerful sense of relatability and community really changes everything- it’s pure gold. Challenges are understood, successes are celebrated and incredible connections are forged. You’re not alone on this journey. There’s many resources, organizations, and advocates who will share support, guidance & open up meaningful connection experiences!

Check out our website to view our recommendations or to simply learn more about limb differences if you’re new to discovery.

https://www.beautifullymadecommunity.org

[email protected]
📸: Boston Children’s Hospital & Beautifully Made Community 2025 Limb Difference Event. Made possible by

✨Limb Difference Spotlight✨
Femoral Anteversion

“Femoral anteversion is a condition where the femur (thigh bone) twists inward. The inward twisting of the femur causes the knees and feet to turn inward. Femoral anteversion occurs in approximately 10% of children, and the cause is unclear. Femoral anteversion often resolves on its own as the child grows and does not necessitate treatment. In more severe cases that do not self-correct by age 8 or 9 years old, treatment may involve bracing and special shoes aimed at correcting the foot position, or surgery to rotate the femur to a better position.”

✨RESOURCES✨

▫️Instagram-


▫️Websites-
▪️ https://www.childrenshospital.org/conditions/femoral-anteversion #:~:text=Femoral%20anteversion%20is%20an%20inward,is%20also%20called%20in%2Dtoeing.
▪️ https://www.chop.edu/conditions-diseases/femoral-anteversion
▪️ https://medical-dictionary.thefreedictionary.com/femoral+anteversion
————————————————————————————
If you have any other resources pertaining to femoral anteversion please feel free to leave yourself or another page in the comments.
•
•

✨Limb Difference Research Spotlight✨
“Functional Impact of Congenital Hand Differences: Early Results From the Congenital Upper Limb Differences (CoULD) Registry”

Purpose - Evaluate the functional, emotional, and social impact of congenital upper limb differences prior to treatment.

Significance - Understanding these areas beyond physical function provides more complete perspective on patient’s function, quality of life and well-being related to their condition.

Methods - Between June 2014 to March 2016, 2 pediatric hospitals enrolled 586 patients in the CoULD Registry. Of those, 301 patients were included in the study. Two patient-reported outcome surveys were given (Pediatric Outcomes Data Collection Instrument - PODCI and the Patient-Reported Outcomes Measurement Information System - PROMIS).

Results - Ultimately, children and adolescents with upper limb differences showed more positive emotional states and peer relationships compared to their peers, in addition to good mobility and overall function, despite reduced upper extremity function.

✨RESOURCES✨

▫️Authors-
📝Donald S. Bae, MD; Maria F. Canizares, MD; Patricia E. Miller, MS; Peter M. Waters, MD; Charles A. Goldfarb, MD

▫️Websites-
▪️ https://www.jhandsurg.org/article/S0363-5023(16)31066-8/fulltext
•
•

✨Limb Difference Spotlight✨

Ulnar longitudinal deficiency, previously known as ulnar club hand, is a condition in which the wrist is in a fixed and bent position toward the side of the hand with the little finger. This condition is also sometimes called ulnar dysplasia. It happens when 1 of the long bones of the forearm, the ulna, and other soft tissues of the hand, develop differently in the womb. The fingers and thumb may also be affected. Other muscles and nerves in the hand may be unbalanced or missing.
There can be other correlations within musculoskeletal system, such as scoliosis.
Ulnar longitudinal deficiency affects about 1 in 100,000 babies.
Infants with ulnar longitudinal deficiency can wear a splint and be treated with gentle stretching exercises to help their wrist and elbow move into a normal position and recover some range of motion. Some types of ulnar longitudinal deficiency can also be treated with surgery to improve hand and arm function. 

✨RESOURCES✨

▫️Facebook-
🔎 “Congenital Hand and Arm Differences”
🔎 “Lucky Fin Project”

▫️Instagram-




▫️Websites-
▪️https://www.childrenshospital.org/sites/default/files/media_migration/b92321c9-b748-42ec-80fc-59af050f763b.pdf
▪️ https://www.stanfordchildrens.org/en/service/hand-upper-limb-surgery/ulnar-longitudinal-deficiency?
▪️ https://www.connecticutchildrens.org/health-library/en/parents/ulnar-dysplasia/
————————————————————————————
If you have any other resources pertaining to Ulnar Longitudinal Deficiency please feel free to leave yourself or another page in the comments.
•
•