Toasting Tanner
Children with Cdkl5 are missing a protein needed for their brain the work properly. Most cannot walk, talk, see or use hands and have severe digestive and breathing problems.
09/09/2024
For those of you who were unable to attend this years Toasting Tanner, I have updated his blog site with my speech and slideshow below.
http://www.tannersjourney.com/
https://youtu.be/sm-L7z_3k_o?si=iPaKOrpr5klGP9q8
08/10/2024
2 weeks away!! Get your tickets now!
http://www.tannersjourney.com/toasting-tanner.html
07/29/2024
Friends…click the link below to purchase a bottle of bourbon while making a donation directly to the International Foundation for CDKL5 Research-IFCR. Just click on “get ticket” for as many bottles as you’d like!! Take your receipt to Rootstock in downtown Woodstock and pick up your bottle. Couldn’t be easier!
Samples will be available at toasting tanner as well! Purchase tickets to that below.
http://www.tannersjourney.com/toasting-tanner.html
https://rootstocknow.com/event/bardstown-barrel-pick-bottle/
BARDSTOWN BARREL PICK BOTTLE Sponsoring international research for CDKL5 research | Experience your rooted moment CDKL5 deficiency disorder is a rare developmental epileptic encephalopathy caused by mutations in the CDKL5 gene, and this can manifest in a broad range of clinical symptoms and severity. The hallmarks are early-onset, intractable epilepsy and neurodevelopmental delay impacting cognitive, motor, spe...
05/31/2024
Toasting Tanner RAFFLE is open!!! $10 per ticket. All money donated to the CDKL5 foundation! Live drawing will be done on June 17th, CDKL5 awareness day!! Details below.
https://www.bigcreekcabinsnc.com/
Horse Pasture Hideaway:
Kick back and relax on the front porch rocking chairs and take in the incredible views of the neighboring farm nestled in the mountains. Get some fresh air while enjoying the great outdoors with a variety of hiking and biking trails, waterfalls, rivers and creeks, fishing and more, all within minutes of this home. Or, nestle up with a great book while you listen to rain drops on the tin roof of this charming getaway. With tons of designer touches, you're sure to be living in comfort.
2 Night Stay - full accomodations covered
NO BLACKOUT DATES!
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