Rare Strides

As clinicians and leaders who’ve lived the rare disease journey, we know every moment of delay costs families time, money and peace of mind. At Rare STRIDES, we are building infrastructure - together we can move care from uncertainty to the right next step faster. The result: fewer missed opportunities, clearer care plans, and better outcomes for patients. Learn more about Code Rare: https://wix.to/kRPZ4kP 🦓🤝

Earlier diagnosis could have changed Maria’s path -if connected systems flagged a rare condition weeks sooner, speeding referrals, expanding access to specialists, and unlocking community resources that eased care coordination. At Rare STRIDES we reinvest every partnership dollar back into the rare disease community, building infrastructure - not another app - that creates measurable benefits: faster diagnosis, better access, and stronger support networks. Caregivers, providers, and investors: join us in scaling solutions that make a real difference. Learn more: https://wix.to/ZBodTZk 🚀💙

Technology that makes rare diseases visible in healthcare!
We are pleased to announce the launch of our new website!

Rare STRIDES® is building the first integrated clinical decision support ecosystem for rare disease — combining human oversight with AI to accelerate rare disease identification and care navigation to end the 5-year diagnostic odyssey that millions of patients face every day. It's like having a rare disease specialist in every clinic; it is the first mobile rare center of excellence to serve as a connector between rare centers of excellence-Built by a nurse with rare to empower patients, caregivers, and medical teams. Learn more and contact us here: https://www.rarestrides.com


https://youtu.be/YB8C8XPZjTU?si=2Il6Lv162lpF3Zb3

Rare Strides What is Code Rare anchor video

EveryLife Foundation for Rare Diseases EveryLife Foundation for Rare Diseases