Bowlyssa

I have had my ups & downs the past few years finding out my baby has cerebral palsy,Optic Nerve Hypoplasia, Seizures (Infantile Spasms and possible Lennox Gastout Syndrome) and a degenerative brain disease (Olivo Ponto Cerebellar Atrophy or OPCA).She may be 4 1/2 but is only about 6 mo old mentally and is dependent on me for everything. No matter what she is my gift from god & I will enjoy her ev  ...