Canadian CdLS Foundation

In this episode of the CdLS Connections Podcast, we sit down with Marci Dunning—mom to Freya and creator of Freya’s Lucky Arm—for an honest and heartfelt conversation about parenting, resilience, and showing up authentically.
Marci shares her journey raising Freya, the power of confidence and advocacy, and what it means to live openly and unapologetically in the rare disease community. Her story is a reminder of the strength, love, and connection that brings families together.
Follow Marci & Freya: Instagram, TikTok & Facebook:
YouTube: Freya’s Lucky Arm

Also available on your favourite Podcast App: https://www.buzzsprout.com/1774404/episodes/18936767

YouTube Link in comments below for Video version ⬇️

Today is International CdLS Awareness Day. A day to remember and hold dear those who have passed.

Many of our Canadian families are in our thoughts today as we remember their loved ones who have passed.

2026 Remembrance Day Video February 12th is International CdLS Remembrance Day. On this special day, we honor individuals with CdLS who have died over the years.Watch this video of som...

This week Wednesday join us for a virtual meet up with fellow CdLS families of School-Aged children. Just in time for the school year 💜

Upcoming Events | Canadian CdLS Awareness Foundation

Our US colleagues have published their summer “Reaching Out”. Always a must read full of gems, hope and wisdom 💜

www.cdlsusa.org